Brothers at risk of dementia take on run challenge

Cian Adams (left), Jordan Adams fiancée, Agnès Dangreaux (centre) and Jordan Adams (right)Image source, Jordan Adams
Image caption,

Cian Adams (left) and Jordan Adams (right, pictured with fiancée Agnès Dangreaux) hope to help find a cure for the disease even if it is for future generations

  • Published

Two brothers at risk of developing dementia in their 40s are to run the London Marathon followed by the entire length of the UK.

Jordan Adams, 28, and Cian Adams, 23, both from Redditch, have inherited a rare faulty gene which can lead to frontotemporal dementia (FTD).

The siblings discovered they carried it after their mother, Geraldine, a patient with the condition, died in 2016.

Funds raised by the runs will go to the Alzheimer's Research UK charity.

According to the NHS, FTD is an uncommon type of dementia that causes problems with behaviour and language.

In 2010, the brothers learned their mother only had a limited time left to live because of the condition.

Jordan Adams discovered he was also a carrier in 2018.

He said: "[Being a carrier] means I am likely to inherit symptoms of FTD in my 40s and sadly one day I will lose my life.

"I have really tried to focus on the positives and to try and raise awareness for Alzheimer's Research UK and be a part of a group that finds a cure in the future."

Image caption,

Jordan opened up to the BBC about the experience of watching his mum slowly lose all her characteristics to the disease

The brothers will be running as part of Sue's Crew - named in honour of Sue Strachan from Staunton on Wye in Herefordshire, who has vascular dementia (VD).

Since her diagnosis Ms Strachan has made it her mission to raise money for Alzheimer's Research UK, even running the London Marathon herself in 2018, aged 62.

Following the run in the English capital in April, the brothers will take on their John o' Groats to Land's End challenge in September.