Judge says parents and children should receive infected blood payments

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Protesters outside parliament in 2016Image source, Shutterstock
Image caption,

Victims and their relatives campaigned for decades for a public inquiry into the scandal (pictured in 2016)

The parents and children of victims of the contaminated blood scandal should receive government compensation, a judge has said.

The chairman of the infected blood public inquiry, Sir Brian Langstaff, said it was time to "recognise deaths which have so far gone unrecognised".

More than 3,000 people died after contracting HIV or hepatitis C via NHS treatments in the 1970s and 80s.

The government must now respond to the recommendations.

In August 2022, the government agreed to make the first interim compensation payments of £100,000 each to about 4,000 surviving victims, and bereaved widows.

Sir Brian said a final compensation framework should be set up by the end of the year for those individuals and other groups.

"It will clearly take political will to act quickly, but the circumstances here warrant it," he said.

Giving evidence in 2021, then health secretary Matt Hancock said "of course" compensation would be paid to victims and their families if the public inquiry formally called for it.

'Time to put right'

The long-running public inquiry into the infected blood scandal started taking evidence in 2019.

Previously, those infected with HIV and hepatitis C had survived on annual financial support payments, but had never been compensated for loss of earnings, care costs and other lifetime losses.

Victims' groups said the original decision to award interim compensation was a major step towards an official admission of responsibility for what has been called the worst treatment disaster in the history of the NHS.

In a second set of recommendations, Sir Brian has now said payments should be extended to the parents and children of those who were infected.

"It is a fact that around 380 children with bleeding disorders were infected with HIV. Some of them died in childhood. But their parents have never received compensation," he said.

"Children who were orphaned as a result of infections transmitted by blood transfusions and blood products have never had their losses recognised. It's time to put that right."

Image caption,

Jason Evans was four when his father, Jonathan, died in 1993

Jason Evans's father Jonathan died from an Aids-related illness in 1993 after receiving infected blood products. He now campaigns for those affected by the scandal.

"I grew up without my father, so to learn that there might at last be some recognition of what was done to him was important," he told the BBC.

"It's really significant that Sir Brian Langstaff said in his statement that wrong had been done and that this should never have happened."

He urged the government to implement the judge's recommendations in full as soon as possible.

What is the infected blood scandal?

Thousands of NHS patients with haemophilia and other blood disorders became seriously ill after being given a new treatment called factor VIII or IX from the mid-1970s onwards.

At the time, the medication was imported from the US where it was made from the pooled blood plasma of thousands of paid donors, including some in high-risk groups, such as prisoners and drug users.

Media caption,

Video statements were played at the start of the public inquiry in September 2018

If a single donor was infected with a blood-borne virus such as hepatitis or HIV, then the whole batch of medication could be contaminated.

It is thought about 1,250 people with bleeding disorders were infected with HIV, with half of that group later dying of HIV-related causes.

The inquiry estimates that another 30,000 UK patients were also exposed to hepatitis B or C through the same treatment or a blood transfusion after childbirth or hospital surgery.

More than 2,000 died of liver disease or cancer linked to the infection.

'Full compensation'

Sir Brian said that a full compensation scheme should be set up immediately for victims of the scandal, including those who have already received interim payments.

That would mean individuals can claim compensation for care costs, financial harm and societal harm.

It would cover increased payments for people who could not have children because of their infection, or who lost their jobs because of the stigma of HIV/Aids in the 1980s and 1990s.

The inquiry team is then expected to produce a final report into the scandal, with a list of recommendations, at some point in the autumn.

A government spokesperson said the government was continuing preparations for responding to that final report.