Ross-on-Wye: Parents' joy as Alfie turns on Christmas lights

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Alfie with parents Courtney and Lannock at the Ross-on-Wye Christmas lights switch-on
Image caption,

Alfie was chosen to switch on Ross-on-Wye's Christmas lights

Parents of a boy with a rare genetic condition have spoken of the "absolutely amazing" moment he turned on a town's Christmas lights.

Two-year-old Alfie switched on Ross-on-Wye's lights on Sunday after being chosen for the honour by the council.

The youngster has a gene mutation that affects his limbs, muscles and eyesight.

He has also suffered two seizures, the first of which led to his diagnosis earlier this year.

Speaking to BBC Hereford and Worcester, Alfie's mum Courtney said: "It was absolutely amazing. He was just on top form from start to finish.

"He was there waving at everyone and laughing his head off. He was on his best behaviour - he was the best."

Image caption,

Alfie's mum Courtney said the switch-on moment was 'absolutely amazing'

Alfie's dad Lannock said he was concerned that Alfie was going to push the button over at one point.

"There was quite a bit of enthusiasm behind it when he turned them on," he said.

Alife is one of just 13 people in the UK who have been diagnosed with the CACNA1A gene mutation.

It caused a prolonged seizure in March, which led to him losing his peripheral vision and left him partially paralysed.

Alfie spent nine weeks in hospital followed by 12 weeks of rehab with The Children's Trust.

He has regained full control of his neck and sitting balance, and has started to crawl.

His parents said they were "amazed" at his progress and they were determined to make this Christmas their best yet.

Image source, Submitted
Image caption,

Alife was diagnosed with a rare gene mutation after suffering a seizure

Alfie was selected by Ross-on-Wye Town Council after members were moved by his inspirational story.

"It is his bravery and not just his, his family's as well," said Charlotte Reynolds of the authority.

"They have had a really, really tough year and it is what the community is all about, it is what the Christmas fair is all about - supporting the community and pulling together."

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