'We won't stop until £1m raised for dementia cure'

Two men in orange t-shirts standing in front of the sign for Land's End, on a cliff top overlooking the sea. The t-shirts are printed with a logo of a running brain, with The FTD Brothers written underneath. The Land's End sign has been customised to say "FTD Brothers, 1st October".Image source, Laura Newbury Photography
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Cian and Jordan Adams were "overwhelmed" by the support they received for their charity run of the length of the UK to raise money for dementia research

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Two brothers in their twenties, at risk of developing early dementia, have said they will not stop fundraising until they have contributed £1m towards research for a cure.

Jordan and Cian Adams from Redditch, Worcestershire, completed an epic 31-day run of the length of the UK on Tuesday, with family and friends at their side.

They lost their 52-year-old mum, Geraldine, to rare frontotemporal dementia, external (FTD) eight years ago and have both inherited the gene that caused it.

"People laughed at us when we set a lifetime goal of £1m towards a cure and here we are a year later... 20% of the way there, this is just the beginning," said Cian.

Image source, Laura Newbury Photography
Image caption,

The brothers were joined on their epic run by dad Glenn and other family and friends

Symptoms of FTD can typically start between the ages of 45 and 64, according to Alzheimer's Research UK.

Jordan, 29, found out he inherited the faulty gene which could lead to the condition in 2018. Cian, 24, was told he was also a carrier last year.

The pair, who also lost their grandmother and aunt to dementia, have since joined forces for fundraising efforts.

Powered by peanut butter bagels, they battled some of the wettest September weather on record to finish their 900-mile (1,450km) run at Land's End, Cornwall.

Older sister Kennedy Frampton, who has tested negative for the gene, joined her siblings for the final leg.

"I haven’t done any training but if they can run 900 miles, what’s a extra 10 for me," she told BBC Breakfast.

Dad Glenn Adams, who took part in the challenge on his bike, said: "It's been very difficult at times and we've pushed ourselves but we've all gone in there as a family. We've stuck together because their mom showed us what love is."

Image source, Laura Newbury Photography
Image caption,

Sister Kennedy Frampton (L) joined the brothers on the last leg, while family friend Nigel Watson (centre) and dad Glenn Adams (R) were with them throughout

The brothers said seeing supporters, friends and family at the end of their epic run was "overwhelming".

Speaking at the finish line, Cian said: "It's not just me and Jordan going through this, it's familial frontotemporal dementia, it's hereditary. It's written in our DNA, we've all been through this together."

His brother added: "We've been through so much heartbreak, I think it's hard sometimes to put it across how painful it's been growing up... We're not going to stop here. We've got 15 years.

"I firmly believe that, even if it doesn't come for us, we can be a huge part in finding that cure and that's what I want to be remembered for, and that's what I want Cian to be remembered for."

Susan Kohlhaas from Alzheimer's Research UK said the charity was "thrilled to bits" the brothers had smashed their £100k fundraising target.

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