Race to honour girl who died with rare illness

The 2024 Blaydon Race has partnered with the Nicole and Jessica Rich Foundation to raise awareness of Batten disease

The Blaydon Race has partnered with a charitable foundation to honour a girl who died with a rare disease.

Nicole Rich from Throckley, Newcastle, died from complications from Batten disease in October, aged 11.

Now a foundation set up in her memory, the Nicole and Jessica Rich Foundation, has partnered with race organisers to raise awareness of the genetic disorder which causes a progressive deterioration of the brain and nervous system.

Nicole's family said they were "delighted and honoured" to be supported by such an iconic event.

The historic 5.8 mile (9.3km) race always begins at 18:15 BST.

The route, from Newcastle City centre to Blaydon, is based on the lyrics to the 1862 song by Geordie Ridley, The Blaydon Races.

International Batten Disease Awareness Day also falls on 9 June.

Nicole Rich passed away in October following health complications related to Batten disease

Nicole's sister Jessica, eight, also has Batten disease and is currently undergoing treatment.

Her older brother, Louis, 13, will be at the race to help raise awareness of the disease.

Leaflets about the foundation have been put in goody bags for racers.

There will be also stall at the finish line and the race announcer will talk about the disease and its symptoms.

Nicole's mother, Gail Rich said: "We're going to be just thinking of Nicole and her sister every step of the way," she said.

"Nicole was so resilient and so strong.

"And we just think if we can have an ounce of her strength and courage, then we'll be okay."