Artists with Huntington's disease create exhibition
- Published
A group of people with the same "debilitating" disease have created a "joyful" art exhibition.
Our Creative Journey has been put together by eight people with Huntington's disease in Gloucestershire.
The Huntington's Disease Association (HDA) said the event will highlight "the importance of art for improving the wellbeing of people living with debilitating and incurable illnesses".
The five-day exhibition is being held at St John Baptist Church in Cirencester between Tuesday to Saturday.
The condition is caused by a faulty gene and leads to the progressive loss of brain cells, affecting movement, mood and thinking skills. It can also cause aggressive behaviour.
The show is a joint project by artists Bert and Elise Holland, Charlotte, Clair, Evie, Kate, Spencer James and Steven Hart.
Carol Dutton, specialist adviser at HDA, said: “The initial idea for an art exhibition came about during the Covid lockdown on one of our online Huntington's disease group meetings, when we discovered how many accomplished, talented artists we had in the Huntington's disease community in the locality.
"For some, art is a way to focus, distract from symptoms or find purpose and joy.”
The eight artists include father and daughter, Bert and Elise.
Bert has Huntington’s disease, and his daughter has the rarer form of the condition, Juvenile Huntington’s disease where symptoms start before the age of 20.
“Elise is able to spend time every week creating her artwork and she derives such pleasure from it.”, said her mother, Alison.
Another of the artists, Spencer James, left his job when his symptoms worsened, and for a time he upcycled broken furniture.
Parents Phil and Charlie said: “As time moved on and he could no longer use a brush or sander, he found other ways to express his need to create.
"Using an iPad he now creates abstract images using different pallets and brushes and manipulates them with his fingers, which we print onto canvas and velvet.”
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