Six-year-old boy with rare cancer dies

Sebastian NunneyImage source, TEAM SEBASTIAN
Image caption,

Sebastian Nunney was diagnosed with neuroblastoma in 2020

  • Published

A six-year-old boy with a rare cancer who had thousands of pounds donated to him for treatment in the US has died, his family said.

Sebastian Nunney, from Kettering, Northamptonshire, was diagnosed with neuroblastoma in 2020.

Various events, which included businesses and schools wearing orange, had been held to raise money for his treatment.

In a post on social media, his family said they were "heartbroken" and described him as a "brave and beautiful boy".

Image source, TEAM SEBASTIAN
Image caption,

Schools, businesses and community groups were encouraged to wear orange to support Sebastian, as it was his favourite colour

Neuroblastoma is a rare, aggressive and complex cancer most common in children under five.

It is treatable on the NHS, but survival rates when relapses occur are poor.

Sebastian's family had raised more than £130,000 of their target of £250,000 to fund treatment either in Europe or the US, and support his care.

The family said "any leftover funds will then be donated to a UK charity focussing on fighting this rare disease".

Last year, Sebastian was chosen to switch on Kettering's Christmas lights.

In a post on Instagram, external, his family added: "He was very brave, and it was peaceful and pain free at the end."

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