Sam Brown, six, waits for NHS Morquio drug decision

A six-year-old boy from West Yorkshire with a rare genetic disease is still waiting for a ruling from NHS England about funding his treatment.

Sam Brown, from Otley, suffers from the incurable Morquio syndrome, which affects the way his skeleton grows.

Since a clinical trial ended last year Sam has been receiving the drug Vimizim on a compassionate basis.