Rare disease: Twins 'support each other' through condition
People with rare diseases in Northern Ireland have been sharing their stories through a series of short films.
There are more than 7,000 known rare conditions worldwide.
It is estimated that more than 110,000 people, or one in 17, are impacted by rare conditions in Northern Ireland.
The Rare Stories project explores a wide range of issues from difficulties in getting diagnosed to tackling stereotypes.
Video journalist: Niall McCracken