'It’s our son's life'published at 12:10 Greenwich Mean Time 13 January 2023
Gem O'Reilly
BBC News
For some people the cost of living might mean changing grocery stores, not going on holiday or cutting back on the extras. For Lauren, it's her son's life.
Six-year-old Cohen from Basingstoke survives off the machines in his home and his mum's energy bills could rise to more than £3,000 a year.
Cohen can't walk, talk or digest food properly because he has two genetic deletion conditions called DiGeorge syndrome and 15q11.2. He's thought to be the only child in the world to have both conditions.
Lauren, Cohen's mum, said: "The cost of living crisis, for most people, it’s 'Oh we just won’t go on holiday this year' but for us it’s our son’s life."
Lauren explained to me that her gas and electric bill in December was more than £400. This has gone up from £258 the previous month.
I asked Lauren about how many devices Cohen needs to maintain his health.
She said: "He requires to be tube-fed for 18 hours a day. We use a stair lift for him to get him upstairs.
"He has hoists in the bathroom and his bedroom. All the machines that we use cost us more money. The machines that we use for Cohen keep him alive.”
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