Schoolboy tells his Tourette's story in 2013
Tourette's syndrome is often characterised as outbursts of bad language.
But when eight-year-old Spencer Davies-Monk was diagnosed, his parents Richard and Hayley from Upper Heyford, near Bicester in Oxfordshire, learned the condition was far more complex.
They also had little help and support, as BBC South's Peter Cooke found out in this report from 2013.
Now more than a decade on, Mr Davies-Monk, 20, said his condition was "just a part of me".
The Portsmouth student has been speaking to the BBC along with a woman from Bournemouth and a doctor from Reading.
You can find information and support for issues raised in this story at BBC Action Line.
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